Wednesday, August 28, 2013

End in Sight!

Tuesday, August 27th

Life in the Marsh home is finally starting to come back together again. We haven't had hot water since we moved in (thank goodness the girls aren't home yet)! The cable was finally hooked up today (Dad is happy now). The house is slowly starting to look like a home, rather than a tornado zone. And just in time too....because Kinley might be coming home this week!!!! Her doctor put her on reflux medication yesterday, and it seems to be helping. If she can make it 48 hours with no problems we can start planning her discharge!


Kinley is almost ready to come home!

The doctor said that Thursday would be the earliest she might be sent home. But, the girls have eye exams on Thursday morning, which is a pretty rough experience for them. So, it will most likely be Friday that we begin the process (assuming she has no problems before that). We will need to bring in her carseat soon so that they can monitor her sitting in her seat for 90 minutes. This is standard for all babies in the NICU to make sure they can handle the new environment and position. Then, we will be rooming in with her for the night before her discharge. Now that the new wing of the NICU is open, there is a beautiful room-in suite for parents. For most new parents of preemies, the parents are required to spend the night at the hospital with the baby under the supervision of the nursing staff. If everything goes as planned, we would do this Friday night and then (hopefully) bring her home Saturday! Of course....Kinley may have plans of her own, but for now we have an end in sight (for Kinley at least).

Devyn is doing great as well! Her breathing is very stable, with the exception of feeding times. She has such a strong suck that we cannot find a bottle slow enough for her to eat from. Devyn and I met with one of her therapists this morning to try out a new bottle. She sucks so hard that she gets too much milk and struggles to swallow it all before breathing. The bottle did not work out as well as we had hoped. However, Devyn is great at breastfeeding! She still has to be paced so that she pauses to breathe every now and then, but overall she does fantastic! The major consequence of these problems is that if we can't find a bottle that she can succeed with, then breastfeeding will be the only way to get her home. She has to be able to eat on her own (with no feeding tube) and gaining weight for 48 hours before they will send her home. That could prove quite difficult if Kinley is home. I would need to be at the hospital every 3 hours to nurse Devyn, and Kinley would not be allowed back in the NICU once she is discharged.. I'm going try my best not to worry about that for now....

Devyn is pretty in purple today!

Uncle Scott with Devyn 




Julie with Kinley
 
 It's not polite to stick your tongue out Devyn!
 
Oh...I see where you learned it from.

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